in a nutshell
The Foundation “BULGARIAN ASSOCIATION OF NARCOLEPSY PATIENTS” (BANP for short) is an inclusive resource for people with narcolepsy and their carers. BANP was founded in Sofia, Bulgaria in 2021 by Adriana Andreeva Dimitrova and Kaloyan Georgiev Dimitrov, parents of Boryana Dimitrova, diagnosed with Narcolepsy type 1 in 2020 at the age of 10. The aim of the association is to transform the way narcolepsy patients have access to diagnosis and medical treatment, and be accepted with dignity and care in society.
Through its activities, the association encourages greater knowledge and better understanding, respect and support for people with narcolepsy and those responsible for them. BAPN shares advice and insights, highlights opportunities to improve the well-being of patients with narcolepsy and hosts a variety of events that bring together different groups related personally or professionally to the topic of narcolepsy. If you are willing to learn more about Narcolepsy and in need of extra guidance, this is the perfect place to start.
The main mission of BANP is to help people with narcolepsy and their carers to have a full life, and to receive support and adequate understanding by the society.
BAPN is an independent organization that operates in accordance with the Constitution and laws of the Republic of Bulgaria. It was listed in the Commercial Register and the Register of Non-Profit Legal Entities (link here) on 10.02.2022. The Association is a non-profit legal entity – a foundation in accordance with the requirements of the Law on Non-Profit Legal Entities. The association is a voluntary, self-governing public organization and has no political or religious character. The association is managed by Adriana Andreeva Dimitrova.
- Collects and disseminates useful information and practical initiatives
- Organizes events
- Creates support groups
You can support our work by donating to the bank account of the foundation “Bulgarian Association of Narcolepsy Patients”:
IBAN: BG75 UNCR 7000 1524 7239 69
What will your donations be used for?
- Administrative costs for maintaining the activities of the association – accounting, website and media maintenance, and the support group.
- Dissemination of information – events, consultations with specialists, publications, promotional materials.
- Fees for lecturers and consultants to help patients lead a better life.
- Patients support – costs of diagnosis and treatment.